3 – Year Journey – Raising Awareness for Retinoblastoma

Retinoblastoma is the most common intraocular cancer in children. One out of 15,000 children suffer from this malignancy. Typically, parents notice that one or both pupils turn white and their child has difficulty seeing.  In 2017, a university in New Delhi, India initiated a long-term project to detect that white eye reflex in children. It was spearheaded by Nirmala Muralidhar, the project coordinator of Janki Devi Memorial College, under the direction of Dr. Vikas Menon, their consultant ocular oncologist. What began as a student faculty project, in November 2017, it transformed into a larger initiative where a Non Governmental Organization (NGO), ophthalmologists, ocular oncologists from specialty eye cancer centers collaborated to create awareness for early detection of retinoblastoma cancer.  


The long-term goals of this project included sensitizing families to the appearance of the white eye reflex, stirring awareness amongst doctors about retinoblastoma and prompting parents to be aware of their children’s eye health. Using photography as a tool for early detection, they created awareness of children with special needs who suffer from retinoblastoma. Though these objectives were slowly accomplished over 3 years, there were many activities, learning opportunities, and research studies presented to educate the public. The Strides for Retinoblastoma was most profound and heartfelt, as an RB survivor led a walk with over 200 people during World Cancer Day on February 4, 2018. 


While many research studies are able to spread awareness of retinoblastoma within the healthcare professional world, this initiative is unique as its audience was varied. It included parents, children and healthcare workers. All were involved in this coordinated campaign to save both vision and life.. The Eye Cancer Foundation continues to be determined to create awareness of retinoblastoma, to supply trained eye cancer specialists to underserved communities and is more than proud to announce the success of the JDMC awareness campaign. 


For more information contact  Dr. Puneet Jain at pjain@eyecancer.com

Retinoblastoma Screening in Babies

Public Awareness Campaign 

Eye Checkups




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