Patients today have a wealth of resources available to understand their diagnosis and find community support. Below are links that our patients have found most helpful.
Information & Support
- The Eye Cancer Network – The ultimate handbook and resource for eye tumor patients and their families.
- Eye Cancer Patients Forum – Large and active Facebook group for eye cancer patients to find community and support.
- Retinoblastoma Forum – A special Facebook group for parents and family members of children diagnosed with retinoblastoma.
- American Cancer Society – General information on cancer, treatment, and patient support.
- National Cancer Institute – Information from the US government’s primary agency for cancer research.
- American Joint Committee on Cancer – Information on the classification and stages of cancer.
- Directory of Eye Cancer Links (see “Patient Support” in the main menu) – Links to dozens of websites relating to eye cancer and patient resources. If you haven’t found what you’re looking for here, you will find it there.
Scientific References
- American Brachytherapy Society consensus guidelines for plaque brachytherapy of uveal melanoma and retinoblastoma – Detailed technical information on plaque brachytherapy (radiation treatment) of choroidal melanoma and retinoblastoma.
- American Association of Physicists in Medicine study of dosimetry for eye plaques for intraocular tumors – Information relating to the accuracy, safety and quality in the use of radiation in medical procedures such as medical imaging and radiation therapy.
